Even before the development of next-generation DNA sequencing, genetic analysis raised numerous ethical issues. Whole genome analysis, however, raises additional issues and it is important that they be addressed thoroughly as part of any human genome interpretation effort. Personalis founders have been leaders in the field of genome ethics, publishing on the topic well before the founding of the company: Challenges in the clinical application of whole-genome sequencing Ormond KE, Wheeler MT, Hudgins L, Klein TE, Butte AJ, Altman RB, Ashley EA, Greely HT. Lancet p(2010 Apr 29). The concern for professional ethics in genomic medicine has been continued from the inception of Personalis. The company’s first non-CEO employee was a Genetic Counselor, with experience at the whole genome level. The company also established an internal Management-Level Ethics Committee, led by the CEO. This committee meets regularly and reviews all DNA samples and genomic data sets prior to use at the company. The company has also retained the services of an independent IRB and works closely with customer IRB’s to address ethical issues relating to human subjects research.
Terms of Agreement
Last Updated: December 17, 2020 Personalis, Inc. (“Personalis”, “We”, or “Us”) respects the privacy of visitors to our website and is committed to protecting it through our compliance with this policy. Personalis is located in the United States and personal data provided to us will be used and maintained by us in the United States. For United States residents, we provide this policy in accordance with the California Consumer Privacy Act of 2018 (“CCPA”) and other applicable California privacy laws.
For European Union (“EU”) and United Kingdom (“UK”) residents, the section on “International Users” provides information regarding our appropriate mechanisms for personal data transfer from the EU and information related to the UK Data Protection Act of 2018 (“DPA 2018”) and the General Data Protection Regulation of 2018 (“GDPR”), EU 2016/679.
Data Collection and Use
We may collect, store, and use several types of information from and about users of our Website, including both (1) personally identifiable information and (2) non-personal information. This information may include information voluntarily submitted by you or information collected from activity with our Website. For more detailed information on personal information from children, please refer to the “Children’s Policy” section below.
The categories of information that we may collect are:
- Information by which you may be personally identified, such as your name, postal address, email address, telephone number, or any other identifier by which you may be contacted online or offline.
- Information that is about you but does not identify you, such as information about your internet connection, the equipment you use to access our Website, and other usage details. We collect this information directly from you when you provide it to us and/or automatically as you navigate through our Website.
- For individuals seeking employment with Personalis, information related to your professional or employment-related history, education, work history, gender, race and ethnicity information, veterans status, and disability status.
We will only use your personal information for the purposes for which it was collected. We may use information that we collect about you or that you provide to us, including any personal information, for the following purposes: to present our Website and its contents to you; to provide you with information, products, or services that you request from us or that we believe may be of interest to you; to contact you; and to fulfill any other purpose for which you provide it. We may also use and process your personal information for marketing purposes (e.g., to offer or furnish additional information to you about Personalis, its products and/or services), to personalize the types of information you receive from Personalis, to store your interests and preferences in order to customize your use of our Website, to communicate with you, to verify compliance with the terms and conditions of our Website, to authenticate customers and users, to evaluate how the Website is being used and the audience the Website is reaching, to compile, identify, and analyze trends and interests to help us improve the Website and/or the products and services that we offer, and to develop and improve the content and operation of our Website or our products and/or services to better serve the needs of our customers and users.
We may also use your personal information to provide you with customer support and to maintain and improve our Website. We may combine your information with other information about you that is available to us, including information from other sources, in order to maintain accurate records of individuals who engage our services. Additionally, your personal information may be aggregated with information from other users of our Website such that the information no longer personally identifies you. We may use and process the aggregated information for the general purpose of evaluating our market and/or business trends, our customer and user demographics, interests and behavior, our past and future product and/or service offerings and/or pricing, or other aspects of our business. We may share such aggregated information with our business partners, vendors, distributors, or other collaborators for these same purposes. We may also sell or license such aggregate information to one or more third parties for use and processing in a similar manner.
While Personalis makes every reasonable effort to protect the information collected through this website, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or “hacking.” Any data transmitted over the Internet may be at risk; however, once it is received at Personalis and entered into its database, it has the same protection that Personalis extends to its own confidential information. We track the total number of visitors to our website, the number of visitors to each page of the website, and the domain names of our visitors’ Internet service providers. No personally identifiable information is gathered in this process.
Your Rights and Choices for Your Information
We provide the above disclosures and mechanisms described in this policy so you can exercise your rights to receive information about our data practices, as well as to request access to and deletion of your personal information. We provide two mechanisms that allow you to submit requests to access, review, update, and/or delete your information. You can submit such requests by (1) calling our toll-free number at 1-855-436-6634 or (2) emailing us at [email protected].
Personalis does not sell your identifiable personal information. We only share your information as described in this policy. Personalis also processes your information for the purposes described in this policy which include “business purposes” under the CCPA. These purposes include:
- Protecting against security threats, abuse, and illegal activity. Personalis uses and may disclose information to detect, prevent, and respond to security incidents, and to protect against other malicious, deceptive, fraudulent, or illegal activity.
- Developing new products and features that are useful to our customers.
- Marketing to inform users about our products and services.
- Performing research that improves our products and services for our customers.
- Fulfilling obligations to our customers.
- Enforcing legal claims, including investigation of potential violations of applicable Terms of Agreement.
Links to Third Party Websites
We are committed to protecting the privacy of children. Our Website is not intended for or designed to attract children under the age of 13. We do not knowingly collect personal information from children under 13. If we learn that we have collected or received personal information from a child under 13 without verification of parental consent, we will delete that information. If you believe that we may have any information from or about a child under 13, please contact us at [email protected]
If you are an EU citizen or are accessing the Website from within the European Economic Area, then this section may apply to you and you may contact us at [email protected] in order to exercise your rights to request access to, update, remove, and restrict the processing of your information.
Personalis is located and operates in the United States, as such your information may be transferred to entities located outside the European Economic Area, including entities located in the United States, for processing consistent with those listed above. Personalis will treat all personal information received from you in accordance with GDPR requirements.